Friday, January 8, 2010

Update

For those of you who are wondering, here is what I found out at my appointment this morning.

It actually was pretty good news. We found out that my left eye had some sort of infection back when I was a kid, maybe even a parasite of some kind. We will never know exactly what it was. However, the infection is no longer active. It left many "spots" or lesions in my left eye, one right near and on my optic nerve (thus causing my blindness). We do not know if my Brown's syndrome is because of this infection too or if it is happening "just because." There is nothing they can do about the damage that has been done. He actually was quite surprised that this infection that damaged my left eye did not go over to my right eye. I am truly thankful that it did not. Although there have been many trials because of my eyes and poor eyesight, there have been some blessings too. The biggest one I can think of is that I have learned humility and have to become humble and more humble every day. It is VERY hard to rely on people (mostly my mom and hubby) to get me and my children places we need to go. It has always been quite embarassing too. Maybe this is why I have this trial. To become more humble. To humble myself enough to ask for help. But it's hard. I don't think people will ever understand how hard it is. I can't just run to the store if I need something. I can't pick my kids up from activities (therefore they don't have many extra curricular activities). I can't take them to or pick them up from birthday parties etc. Get the idea? I have to ask for help every time and I feel like a HUGE burden 99% of the time.
Wow, I rambled there for a bit. Oh well. So, it's not a tumor and it's not Macular Degeneration. we don't think my eye problems are connected to my neuro problems. Yeah! I still see double. But I will be seeing a eye muscle dr in the future to see if that is "fixable." In the next couple weeks I will have a follow-up with my neurologist (to get the test results regarding and neurological diseases or disorders I may have). I will also have a follow-up with my opthomologist to go over everything about my eyes. So that is what I know. I'll write more when there is more to write. Thank you for all the prayers and good vibes. They are working!!!

3 comments:

Katrina said...

What a relief. I am glad that there is nothing more serious going on or life-altering (in the immediate sense) By the way, what the heck is Brown's disease. I don't think I remember reading/hearing about that one...

D and C said...

That is such good news. I am so glad its not serious. You are still in my prayers though, and in my thoughts, because I can imagine what all of this must be like. You are strong and humble and an example to me.
I love you.
D

Anonymous said...

Wow. That's crazy about that parasite. It is pretty lucky that it didn't spread! I'm glad that they figured it out. Now they just need to get those headaches and dizziness and what not under control! Let me know if there is anything I can do for you! You are an inspiration to me and I hope someday I can be as accepting of trials and as strong as you! Thank you for your friendship and your support. It means so much to me! I love you!